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Our Friday the 13th appt!!!

June 15, 2008 on 12:04 am | In Uncategorized | No Comments

Friday was our day 39 of Interim Maintenance. Wasn’t too bad as far as the procedures, he had his finger “poked” and they checked him over. His ANC was 1200 which is pretty good!! I don’t think I posted his last ANC but it was 4500 last time which is one of his highest. We got there at 9:30 and we didn’t get out until 12:00. It seemed like forever with two 2 year olds bouncing off the walls in a tiny room for 2 hours!! LOL We saw a resident first and he asked lots of questions on how he was doing. He asked about the brusing on his legs and asked if there was any more on him. I told him that it was mostly on his legs and he said it was fine and then pointed at Blakes legs and kinda laughed and said it’s just a boy thing. They are all boy and play hard. Bryce has not slowed down too much at all from all this. He plays just as hard as Blake and is more energetic than he has ever been.

After we saw the resident, we got to see Dr Ayaanar!! We haven’t seen her in a while. We saw her a lot probably the first two months. When he was in the hospital and then after at the clinic appts. She is really nice and was happy to see him. He didn’t really talk that much because he was getting cranky but she made a comment about how much more outgoing he was and how much hair he still has. He was SOOOO shy and backwards in the hospital. She was happy to hear that he hadn’t had any setbacks and was doing so well. She did tell us to be prepared for the next phase, he could likely be back in the hospital.

On June 24th he will start the dreaded Delayed intensification. On the 24th he will be accessed at the clinic and given Vincristine and a new chemo Doxorubucin through his port. I have read a little on the Doxorubucin and it’s nickname is the Red Devil. It’s nickname is because its red in color and it’s effects are pretty rough. He will also start the steroids again and will go over to OMO to have his spinal tap with methotrexate. This will be on a Tuesday and then Friday he should get his PEG Asparaginase shots. These are inserted in to his legs muscles and will probably make him pretty sore.

Then that weekend we will be having their BIRTHDAY PARTY!! We are doing it the weekend before their birthday just in case he’s not feeling well or his counts get too low. We bought them a playset for the backyard and we wanted him to have some time to enjoy it just in case he gets down. So it will give him an extra week of FUN! TJ put it up and Blake has already spotted it when we pulled up to the house one day… so we are considering just letting them go ahead and play on it. There is a big fireworks show and festivities at a local church on his birthday though if he’s feeling well we are going to take them to that.

We had their birthday pics made and they turned out pretty good. At least they weren’t screaming, crying, and terrified!! We haven’t had them made since their last birthday so we were happy with all the smiles!!

Bryce

Bryce on the left