brycebelt.net Blog

4/29/08 Updates

April 30, 2008 on 12:03 am | In Uncategorized | No Comments

He has had a wonderful fun filled weekend. He went to the park and Baskin Robbins on Saturday and went to Kart Kountry on Sunday. He actually has had a wonderful week or two with the great weather. We have taken them to the park several times and they have been to the ballpark several times with Ashley. He will have to cool it for a while now though because of the weather.

His counts were still good today!! They were 1900, so he was able to start his new phase of treatment. He had to have two “pokes” today. She just couldn’t get enough out of the one and had to do another finger. He didn’t mind at all. He just admired his two garfield bandaids and was able to get two toys out becuase of the two “pokes”. He picked one for him and gave Blake the other one.

His port was accessed and then he was given Vincristine (chemo) through it and then it was de-accessed. Daddy was at his appointment so he got to sit on Daddy’s lap for all of that. He was brave as always and didn’t cry for any of it. He even gave me a big smile and a wink while they were giving him his Vincristine.

He starts new meds this week which seem a little confusing. Here is a rundown of his meds now:

Bactrim 5ML (liquid) Monday thru Wed 2x daily
6MP (pill) Monday thru Saturday 1x daily
Methotrexate (pill form) Thursdays 1x but he takes 4.5 pills
Rantidine 2ML (liquid) 2x daily while he is on the dexamethosone
Dexamethosone (pill) 2x daily for 5 days He gets 1.5 tabs in the morn and two at night and he will only get one dose in tonight so he will actually end in on Sunday morning

I am so worried by this confusing schedule I am going to miss something. I completely forgot his Bactrim yesterday morning and didn’t remember until last night. I asked the Nurse practioner today and she said that I could make it up by giving him a dose on Thursday morning. I hate that I missed it, but she said if that’s all you have missed you are doing good. I am glad that’s all I have missed but it really bugs me that I did. At least it was something that could easily be made up.

Also since he will be on the dexamethosone again I have to check his blood pressure daily at home. The first time he was on it his blood pressure was extremely high and took several medicine and dosage changes before they could get it controlled. So if his blood pressure is higher than 100 over 70, I have to call.

The good news is that he doesn’t have to go back to clinic for a MONTH!! We do have to go in two weeks though to our local hospital to check his blood counts. But it’s only 15 minutes away versus an hour away. When we go it will be an OMO day. He will have to go over to the hospital to have a spinal tap that day. I think it’s scheduled for May 27th. So other than the home meds, the next few weeks should be great for him.