brycebelt.net Blog

Appointment Today..

Everything went well today and his counts were really good. His ANC was 1500 which is a huge improvement from Friday’s being 400. He is such a big boy and handles everything so well. They had to poke his finger for his labs and he gets a little worked up and says no hurt the whole time but never actually sheds a tear and always looks forward to the band-aid he’s going to get. He lets them get his blood pressure, temp, and weights without any fuss. He lets another one listen to his heart, check his ears and mouth all without any problems. Then they have to access his port to give him his chemo through. The nurse wanted to know if we would need help to hold him and I told her no because I know how good he is. He just says says no hurt no hurt the entire time but never jerks or fights. At home he has to take several meds twice a day which is 2 or 3 syringes at a time and he now says “I will do it” and he takes the syringe and puts it in his mouth and pushes it himself. He is still in a great mood constantly laughing and playing. He is just so energetic again and really hard to even tell that he is sick.

His next appointments are Tuesday. He has his regular clinic appointment and then he leaves from there to go over to Kosair’s for his bone marrow and lumbar puncture (chemo). This bone marrow test is really important. It will be the one that will decide his next phase of treatment depending on the outcome. Everyone please keep him in your thoughts and prayers that this bone marrow test comes back clean and that he can be on a less aggressive chemo plan.